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Thursday, February 17, 2011

Genetics Visit 2011

We seem to have scheduled ourselves full this week. Caroline has only three specialist and two of her yearly visits fell this week. We will visit Ortho next month as well as the dentist. Today we spent almost an hour with Dr.Percyk. He is very patient and kind. It was exciting to see Caroline interact and talk to him although it has been 14 months since our last visit. We were able to view Her brain scan form a year ago and discuss new developments. She has lots of room for growth and some wide ventricles that are not completely shaped as ours....but he expressed the areas of damage are somewhat repairable with time and if she continues to progress she could regain 60- 80% of the damaged areas. Making connections and spurring her on to new things is encouraged.
yesterday we went to the ENT and things are good from a hearing perspective. She does have a cold and possible ear infection. I have a script in case we need it.
Caroline has been out of school all week and will return to her pre-school tomorrow. I also have and ESE meeting to get her accepted into speech and language services at her special needs school. I have decided I want her to only attend her private school next year and receive services within our neighborhood school. This will save me time and gas money. More importantly my peace of mind. Caroline does not seem completely happy at her other school. One day she will have to be there....but next year it is still my right to send her to a private school and receive therapies at no cost through the school system. So I think two more meetings to convey my thoughts. Pray that this will be a reality and bring us comfort.

1 comment:

Kelly said...

Sounds like good news!