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Thursday, May 29, 2008

On the verge

Caroline had PT yesterday and I love our current therapist named Sarah. Caroline is on the verge of sitting!!!! Today we meet with Early Steps and will not get services from them for 45 more days from today. So we are using Wolfson Children's Rehabilitation Center two days a week for now. We have all of our appointments for specialists booked for the next year at the children's hospital. The medical community seems to be on the ball and organized with its services, while Early steps is a constant hassle. I am getting my haircut Saturday and we will also be going to my mom's house this weekend to see family and friends who have not met Caroline yet. We are so excited. I am swamped from more appointments, but we will have some time off in August, September, and October from specialists. Lucy went to her new vet yesterday for her check up and got all her dog meds. I went back to a new chiropractor because my hip is giving me more pain again! I had x-rays done so we can see what is going on and why the problem is returning.

Saturday, May 24, 2008

New things I can do

Caroline is practicing sitting up during bath time in her baby tub instead of lying down in a sling.
We are also picking up little Gerber stars in between our tiny fingers and putting them in our mouth and working on chewing! She has rolled over 3x since April, but it is not a habit yet.

Sunday, May 18, 2008

Fun time

We are really enjoying our time together as a family. We all went shopping at the super walmart tonight - two buggies and two girls. It was quite a field trip! we also went to visit our new church today for church and Sunday School. The girls both did well in the nursery. Caroline's first time. One of my new friends here went to church before us and told the pre- school director all about Caroline. The pre-school director herself kept Caroline the first hour. Talk about feeling like God gave me a hug and said, "I will take care of you no matter where you go." Love to all of you - thanks for all your prayers - I am feeling them daily!!!!!
Caroline now scrunches up her eyes and smiles in response to us when we give her belly raspberries. She is just so joyful. She also can hold the next stage bottles we are using now and drinks 3.5 ounces every three hours - PTL!!!!

Thursday, May 15, 2008

Early Steps!!!

Yeah!!!! We got in contact with early intervention home services. We will get services within the next month! This is for Physical therapy and Speech therapy.

Wednesday, May 14, 2008

Mosaic Triploidy Support Group

I just wanted to share with you all that I have found our very own online support group for mosaic triploidy/ DTM Diploid Triploid Mosaicism. It is amazing to see God work! There is a real special lady who helped put it all together. Her name is Julie. I check my blog and e-mail daily. It is such a source of encouragement. Anyway- I think there are about 13 families that I have contact with that have children like Caroline. I can talk to all of them about anything I need or wonder about. They are all very understanding and have great ideas! There is a family camp that I hope to go to sometime for disabled children and families put together by Joni Erickson Tada. I remember doing a book report on her in third grade. The new project is to connect the triploidy families and have a conference to where we can network and socialize and let our children see one another. We do not have any funding and we are trying to put together a way for us to meet and learn new techniques and therapies. I do believe God's hand is at work in all the ways he leads people. The other thing I do in my free time is network on Jacksonville Mommies here in Jax. It is a great way for me to meet mommies and kids and to learn my way around in a new place. Please pray that Caroline's new therapies start soon! She has been without therapy for 3 weeks. I am waiting on the Early Start program here to contact me. We will go to the orthopedist in July to check on scoliosis for Caroline and see if she will need a brace now or later.

Tuesday, May 13, 2008

Hello Jacksonville

WE are still getting settled her in our beautiful new house. We like our house, but have too much stuff! Lucy is doing ok, but would love a fence! We will have one installed by next Wed. Carley will enjoy more freedom outside to run with a fence too! We have not been to our pool yet, but got membership cards to the clubhouse and pool today. Caroline is better - finally after about 3 weeks!!! She also is finally gaining weight too! ! 12.10oz today! I have been quite overwhelmed with getting things organized and trying to keep a 3 year old busy and find new docs. It is very stressful at times. I can not seem to focus on just one thing, so I do all three when I can. We also went to the Pottery Barn Kids today for story time and Starbucks to meet some new friends. Tomorrow we are going to the pirate ship park at Palencia to meet some other new friends. Cameron is enjoying his work . I am learning my way around town well!