This song is great ! I know that some of you may even know it, but I wanted to post the words. it is by Natalie Grant and it is titled: "In Better Hands"
It really seems to get me through many days and many defeating thoughts. I really feel like it was written for me. I forget I am in better hands. I also forget whose hands Caroline has always been in!
It's hard to stand on shifting sand.
It's hard to shine in the shadows of the night.
You can't be free if you don't reach for help.
And you can't love if you don't love yourself.
But there is hope when my faith runs out.
'Cause I'm in better hands now...........
It's like the sun is shining,
When the rain is pourin' down.
It's like my soul is flying,
Though my feet are on the ground.
So take this heart of mine.
There's no doubt,
I'm in better hands now.
(my favorite part)
*I am strong. all because of You.
I stand in awe of every mountain that you move.
I am changed. Yesterday is gone.
I am safe from this moment on.
And there's no fear when the night comes 'round.
I'm in better hands now.
It's like the sun is shining,
when the rain is pourin' down.
It's like my soul is flying.
Though my feet are on the ground.
It's like the world is silent,
Though I know it isn't true.
It's like the breath of Jesus
Is right here in this room.
So take this heart of mine,
There's no doubt,
I'm in better hands now.
You gotta hear this song to get the full message.
I made it to the store 5 minutes until closing to get this CD and all the typed words.
Friday, March 28, 2008
Wednesday, March 26, 2008
Tubes
Caroline is scheduled for tubes next Thursday April 3, at 8 am. We will be in the main hospital in case of any complications. We will be outpatient. Please pray for me. I am weary. I am tired and not dealing with all the stress of Caroline being sick so long.
BE Ware!
Be ware!!!!! I see a comment from an unfamiliar person do not
click on the comments from "tygogal" - I actually think it is a virus!!! I do not want to lose our info.
click on the comments from "tygogal" - I actually think it is a virus!!! I do not want to lose our info.
Tuesday, March 25, 2008
Double ear Infections
Yes - we have two new ear infections! We were able to see Dr. Downing. We will be going to the ENT and will have tubes soon. Caroline will be getting 4 treatments a day of xeopenex and two a day of Pulmicort And a new antibiotic. We are also going to add acidopholis to replace the good bacteria that is being stripped away. Caroline is her happy self, just alot of congestion and little rest. She has lost a few ounces. We are convinced we will be able to get her back on track with eating as soon as this clears. Thanks to my many friends who have been praying. To any new people who have tried to contact me - please e-mail me at cropfree@yahoo.com so I can converse with you too!
Sick
Caroline is still sick - we are off to the pediatrician again!!!! 3x in the last 13 days. So we may get a second lung x-ray or new antibiotic. At the last visit her ear infection was clear, but the chest congestion and mucous is bad. She does not seem to have a fever, but we are going to talk to Dr. Downing and see what she thinks. We are also still doing nebulizer treatments twice a day. Please pray for direction and wisdom in how to best treat Caroline.
Thursday, March 20, 2008
Neurologist
Caroline had a follow- up appt. at the neurologist today. The doctor was happy and told us we are very lucky. Caroline is very socially alert and responsive to her environment. She asked a lot of developmental questions about her speech , sounds, eating and sleeping patterns. She does not think an EEG is necessary at this time. She does not want us to be concerned about seizure activity unless it occurs. She thinks Caroline will sit un-assisted in the next 6 months and we will not need to return for 6 months. She was pleased that Caroline responds and interacts with her toys and that she can transfer and grasp objects. She has encouraged us to eat cheerios and Gerber snacks to develop her raking skills and to see if she will attempt to self feed with small snacks. So I will probably wait a few more weeks before introducing something new. We are adding an extra PT this week and changing our cereal this week to Barley. We continue to give God the honor for all he continues to do in our lives and through our families. We know all things are possible even in the dark times of life. We rejoice and look forward to celebrating Easter and truly know we serve a RISEN Saviour!
Tuesday, March 18, 2008
New York
We are back!!! We met Dr. H and she was wonderful and very hands on! She spent three hours with us and confirmed lots of things for us. No new big news, but lots of direction. We are taking the oil and polycose out of her bottles and she will have straight formula. We will not eat rice cereal, but Barley cereal - less carbs. She seems to have hip joint restriction and possible C - shaped scoliosis. We will need to see an orthopedist to totally confirm this! We also got a referral for an endocrinologist for us in Jacksonville.
Dr. H gave me some ideas about venting her tube, giving her some water in the am and pm in her tube to help with constipation. Venting her will leave more room in her belly for food instead of too much air. She thought Caroline was very alert and aware. She gave much hope for talking and walking at some point. We will go back to see her in about a year. We also discussed growth hormone treatment in the future and what we need to look for and think about.
She warned us to try not to treat her like an infant because her brain is like an 8 month old she wants to do 8 month old things and not 4 month old things. Assist her to a sitting position and accommodate her to be able to sit and play in he excersaucer.
We will have feeding therapy twice a month and we will increase PT to twice a week.
We are sick now with a cold and ear infection. We are fever free, but had a fever for three days. We went back to the Dr today for a check on our breathing because we have been very congested and breathing treatments twice a day again.
Cameron and I had one day and one night in the city. We went to eat and met up with my cousin Dawn. We spent three days in New Jersey visiting aunts, uncles, cousins and great grandparents. it was wonderful to see everybody!
Everyone was overjoyed to meet Caroline and gave her lots of love!!!!
Caroline is 12.6 today!!!
Dr. H gave me some ideas about venting her tube, giving her some water in the am and pm in her tube to help with constipation. Venting her will leave more room in her belly for food instead of too much air. She thought Caroline was very alert and aware. She gave much hope for talking and walking at some point. We will go back to see her in about a year. We also discussed growth hormone treatment in the future and what we need to look for and think about.
She warned us to try not to treat her like an infant because her brain is like an 8 month old she wants to do 8 month old things and not 4 month old things. Assist her to a sitting position and accommodate her to be able to sit and play in he excersaucer.
We will have feeding therapy twice a month and we will increase PT to twice a week.
We are sick now with a cold and ear infection. We are fever free, but had a fever for three days. We went back to the Dr today for a check on our breathing because we have been very congested and breathing treatments twice a day again.
Cameron and I had one day and one night in the city. We went to eat and met up with my cousin Dawn. We spent three days in New Jersey visiting aunts, uncles, cousins and great grandparents. it was wonderful to see everybody!
Everyone was overjoyed to meet Caroline and gave her lots of love!!!!
Caroline is 12.6 today!!!
Sunday, March 9, 2008
Friday, March 7, 2008
Frustration!
It has been a really bad day for me on the computer!!!!! I have been trying for about 4 days to compile an e-mail containing medical record info for Caroline's NY appt. The office has been a little difficult in requiring us to provide a spreadsheet only via e-mail typed from us. Although all medical records requested were sent in January. I had trouble locating the files I had been working on. I am pretty proficient at e-mail , online banking, shopping and selling on Amazon, but excel spreadsheets and finding lost files I am not very good at that. So after today - I am enrolling in a computer class because I have to be able to send and retrieve information without such frustration. The NY Dr. office would not accept us without this information and just contacted me Monday to say the original spread sheet was not accurately filled out!
Long story short, Cameron contacted my pediatric office who personally called NY and hand typed the info for us after using a home e-mail because they would not accept it from the dr office -it does not make sense. They had the info and wanted it typed in a new format.
So I am giving my pediatrics office kudos from Caroline - they have bent over backwards for us with appointments, special visits and several nurses and admin going the extra mile - I could just cry and am thankful in desperation that as I sat at my computer in tears someone who has never met me or Caroline down the street about 5 miles was working on my document!!!!
I am amazed at how God can work and touch me even in my anger, tears and frustration!!!!
Caroline is doing great otherwise!!!! She is 11.7lbs and had a nutritional evaluation today. her weight, length and head circumference are all proportionate to one another and she is now on the growth chart!!!
Yesterday we were at the pediatric office for our last RSV shot - yeah!!!! She seems to be getting stronger every month! we are contemplating adding more PT! She will probably only get speech therapy once a month for now - she is not that verbally behind yet since she is only 8 months old. We have started baby sign language. Carley and I have 100 words we are working on with flashcards. Caroline always has a sweet spirit in the middle of my storms and chaos. I am saddened to think she may not possible have a "normal" life. Then I think about how my "normal " life is and how I face challenges, struggles, and disappointments. She only has to be herself and does not know disappointment and challenges. She only continues to bloom and flourish despite her circumstances while I worry and hope. I need to glory in her weaknesses and know God will give strength and peace for each new step along the way as I need it.
Long story short, Cameron contacted my pediatric office who personally called NY and hand typed the info for us after using a home e-mail because they would not accept it from the dr office -it does not make sense. They had the info and wanted it typed in a new format.
So I am giving my pediatrics office kudos from Caroline - they have bent over backwards for us with appointments, special visits and several nurses and admin going the extra mile - I could just cry and am thankful in desperation that as I sat at my computer in tears someone who has never met me or Caroline down the street about 5 miles was working on my document!!!!
I am amazed at how God can work and touch me even in my anger, tears and frustration!!!!
Caroline is doing great otherwise!!!! She is 11.7lbs and had a nutritional evaluation today. her weight, length and head circumference are all proportionate to one another and she is now on the growth chart!!!
Yesterday we were at the pediatric office for our last RSV shot - yeah!!!! She seems to be getting stronger every month! we are contemplating adding more PT! She will probably only get speech therapy once a month for now - she is not that verbally behind yet since she is only 8 months old. We have started baby sign language. Carley and I have 100 words we are working on with flashcards. Caroline always has a sweet spirit in the middle of my storms and chaos. I am saddened to think she may not possible have a "normal" life. Then I think about how my "normal " life is and how I face challenges, struggles, and disappointments. She only has to be herself and does not know disappointment and challenges. She only continues to bloom and flourish despite her circumstances while I worry and hope. I need to glory in her weaknesses and know God will give strength and peace for each new step along the way as I need it.
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