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Monday, April 2, 2012

Spring 2012

It has been a long while since an update from the Abbott family. So we are in full swing! Looking forward to summer. We spent spring break at home this year. Carley has started back to karate and is really enjoying it! She stillloves first grade and I love her funny personality! She loves to read and play Barbies. Most of all she really likes playing with her friends! She just recently went down the waterslide in our neighborhood after two years of coaxing! She has strong opinions and a mind of her own and pretty much only does things when she decides.
Caroline is usually her happy self. She is really into listening to music CD's in her room more thanbooks these days. She can turn the volume up and down and knows which songs are on which CD. SHe pops them in and out at her discretion. We call her DJ Jazzy Caroline. She is growing longer and wider unfortunatley. She can get frustrated when she is told no and easily angers into a crying fit. Her speech as really taken off and she says two - to three word phrases.
We were given agreat gift in December a wheel chair that has really helped us with mobility and travel. Caroline still has a stander and a gait trainer. She enjoys her trike best, but needs to develop stronger muscles and stamina to stand and step. It is a long long journey. We have not been wearing th a back brace often enough because it is so restrictive and cumbersome. She also now sleeps in leg braces calle dpedi wraps becaus eher legs are getting stiff a teh knees and bowing. I worry she won't stnad and yeat get pretty discouraged with all the details of her braces and daily treatment machines and her wheel chair and stander. Sometimes I feel overwhelmed and that it is alot. I feel her pain when she cries. She jsut plain gets sick and tired of always being put in devices and never allowed to decide things for herself. I get it!!!! But time is not on our side so I try to roll with it and do what I can. I need strength adn more consistency in her daily therapy needs. We have recently hired a college stuent to help us with Caroline twice a week to bathe and feed her and tak eher on walks and do her treatments. I have really enjoyed being able to take Carley to karate and get our hous ein better order while I have special help. Our college girl is great with Caroline and is just the extra pair of hands I need!

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