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Saturday, July 30, 2011

Ortho Visit

Caroline has finished summer school. Carley has finished art classes. We just got back from Myrtle beach and had a lot of fun in the sand and pool. The new thing we did this summer was letterboxing. The kids loved it. it is almost like treasure hunting in a new city while creating your own family mark in a stamped notebook. We also are starting to have more doctor appointments and yearly check- ups. Caroline is four and will need her four year check. Two weeks ago we went to see the orthopedist and now will be wearing a scolio back brace in a few weeks. we will go on Monday for casting. It is one more thing on our list of woes, but hope it will aid in Caroline standing and walking soon. I can only dream and hope as it seems like it may not be a reality after four years. She is starting to wear on me physically as we have both gained weight. So I have begun gym work outs nearly every day and i need to lift weights and strengthen my body as I am her main caretaker. We are enjoying a quiet day at home. Caroline is napping and Carley is playing barbies. Cam is at work unfortunately. We are thankful for God's continued care and provision, but sure would love for our Daddy's work day to be less. We do not want to grumble and complain. God meets our daily needs and that is all we can ask for. We also sold our Durango as Cam also has been given a company car. This is another answered prayer as we need car payment money for Caroline rather than another car at this time.

Friday, July 8, 2011

Caroline is back to school.....

We seem to have been a bit more busy than the school year. I think we have been to the pool once a week and a play date with friends once a week. Carley has been taking art classes daily for three weeks. She absolutely loves them. There is a lot of planning and painting and sculpting going on. Our sweet friends also have a pool in their back yard and we have been there alot.
It is cloudy and rainy here, but we have a day planned to dress like cows and go to Chick - fil - a.
Caroline went to summer school this week and seems to be happy. This has allowed me to grocery shop and go to the dentist and spend a little time with Carley too!
Caroline plays outside, paints, plays inside the sensory room and takes a nap. I pick her up around 2:30pm. Cam has been kind enough to drop her off so we all do not have to be ready!!!!
we have an orthopedic appt coming up next Monday and a birthday next Tuesday!
Caroline is working on standing and sitting and really starting to bear weight more on her legs. She is getting therapy at school as well as private PT twice a month.
we are not having a big party this year and have hopes of starting a special needs trust for her which will allow Caroline to have the best possible care in the future if she outruns us! It is a high start up cost and we are using birthday party money toward her fund. Please be in prayer for our SSI approval. We were denied once and I have researched more information and am going to apply four times in a row and then higher a lawyer to see about obtaining financial benefits for medical care and costs for Caroline. It is a long process and quite tedious on my part.
We have hopes of ordering a device that will help her crawl which runs $550.00 and she is no where near potty trained so we constantly need diapers. She also takes two meds that run 55.00 a month. We will also need to get a wheelchair in the next two years that can be 2-3,000. I never thought she was expensive, but SSI would cetrtaintly allow us to help her more and maybe add more private therapy. I would love a date night once a week as Cam's job and Caroline's condition often can take a toll on everyday life as tasks become burdensome and cumbersome as she does not walk. Please pray for my daily strength and care I give to my girls. I want to portray Christ's love and actions even on the weary days.Just wanted to update family and friends on our ideas and goals for Caroline in the coming days.