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Friday, April 23, 2010

Saturday, March 20, 2010

Words

Words are so important. They can heal or they can hurt, but sweet words from Caroline are amazing!!!! Since December she is saying so much!!!!It is not on demand, but she speaks and repeats things. It is a blessing and warms my heart. I wanted to share this with any of you who are checking in on us. It is spring and we are excited. Carley is signed up for soccer and we are looking forward to nicer weather!!!!
Some of her words are: Mama, Papa, baby, hi, up, Elmo, Dora, Pablo, Coco, Yeah!!!!!
She responds to most all of our questions with yeah!!!!! - her yes! She also has great communication with signs. She shook her head at her dinner plate the other night and signed cheese to me. So she ate cheese and strawberries only. She loves books and coloring books and can now lightly scribble with pens and markers. These things are huge improvements. We rejoice in all of the way God works in our lives. Carley is reading books to us now which is a lot of fun too!
This week Caroline discovered the stoppers on the back of the doors and she loves playing with them and making that funny noise!!!! She would rather play in her sister's room with her books, doll house, and Barbie's this is so funny to me and nice to see her doing new things!!!!
Yesterday I was drinking an iced coffee from my favorite place and Caroline placed her empty cup in the air toward my cup to tell me she wanted me to share with her. She thought it was Chocolate milk. She finds amazing ways to communicate to me and thankfully I am able to determine what she wants or needs most of the time!!!!!
Happy Spring!

Thursday, February 11, 2010

Feeling Loved

We have been busy this week. Carley lost her tooth. we took a therapy break and we have Carley's Valentine party later today. She is five and I can not believe she lost her tooth already and that the tooth fairy came and went. Caroline is really trying to communicate more and more intentionally. She enjoys going to school every Wednesday. We were in Target a week ago and she found Elmo in the most obscure places, but in her line of vision. She pointed and vocalized "Elmo" each time. So Happy!!!! Her new love is my scrapbooks...she will point and scoot until she gets the right one. we have many, but she signs book and then says. "Elmo".....she looks at Carley's trip to Elmo live. Oh how I woudl be thrilled to take her to see Elmo and feel and see her face light up with excitement. She is definetly a love bug!
Yesterday after picking Carley up from a play date I noticed my tire pressure warning light was on. I did not panic because Cameron always tells me I have a while with all those things.....I panic and never want to be stranded. I was stranded at 21 with a car and a blown engine in the middle of the no where and was scared to death. I got my car manual out and it said pull over and get air or call for service. So I kept driving thinking it woudl be fine. It was.................until bedtime.
Thank God for his provision always!!!!!We are still going to be bale to go to school and get our yummy vaelntine strawberrys from Nana at Peterbrooke this am and have our valentine party.
Cameron filled up the Durango and changed my flat on my van and is taking care of the tires to day as now I need three!!!!So God is good....and meets the desires of our hearts no matter the details. I feel loved because my husband takes care of us and provides for us. I love you Cameron!!!!

Thursday, February 4, 2010

Cookies Anyone!!!




New Photos of the Girls




























Video of a Family in Ireland

Attached is a link to a video from a Family in Ireland who went on a morning to discuss the same syndrome that Caroline has.

http://www.tv3.ie/videos.php?video=18946&locID=

Monday, January 11, 2010

Scooting!

Caroline is on the move. She has discovered a way to move toward her toys. She has given up on rolling and has decided to scoot while sitting upright. She rocks on her bottom and scoots many inches at a time. She is also reaching really nicely across her body and side to side. We have to figure out to teach her to crawl. She can support head weight on arms, but she can not support her abdominal and hip weight at all. She is in her stander twice a day for 30 - 40 minutes. I am so excited of her progress as it is many months and times go by with little or no change in the direction of moving forward. I know I should not measure Caroline or myself in this way, but it is really hard and I think maybe a part of my human nature. I know it is not up to me as much as I want her to grow and achieve these milestones for the both of us. But most days I do feel responsible when little progress is not attained. Like I am being lazy or not doing enough for her. Thank you to many friends who support me by prayer even on the hard days and even when I do not know you are thinking of Caroline. Much love.