We met with our geneticist today with whom we love. He is great with Caroline and very hopeful and encouraging to talk to. he is interested in helping us start a foundation and a possible Mosaic Triploidy - DTM conference in Jacksonville to get our support group together. I was hesitant and wanting everyone to be able to make it and wanting things to calm down to start that project. But as we all know things continue and change and never really stop or calm down.
He was impressed with her growth and development and her signs she has acquired. He says the knowledge of signs is equal to words for Caroline and that is progress and positive development! And also counts for communication. We are going to hold off on the MRI since we are pretty sure she is not having seizure activity at this time. He wants to see us after she is two and we can set up an MRI then. She weighed 20 lbs today. We also called the medical company to come pick up her feeding pump - it is official. We are going to take her tube out probably in June or July and we can decide to do this at home. It will heal naturally and no doc required. It is pretty exciting to me since I have not seen her belly without it since 3m old. I also look back and remember when we thought this child would never be chubby and would always have a feeding tube. Thanks be to God for his everlasting Mercy and Goodness!
5 comments:
Awesome news, Kim! Yes, signing is communication, and it's really great! So glad you have found a wonderful doctor who believes in you and Caroline. So glad to hear the good news. We miss you and love you so much!
What great news!! She is doing so well and I'm glad you guys are seeing so much progress. So proud of her!!
Big smiles here! That is all such wonderful news, God is SO good!
Wonderful, wonderful news. I am so pleased for Caroline and for all of you. What a miracle child she is and so lucky to have you for parents and Carley as a big sister. I'm so glad Caroline is doing as well as she is.
Peggy Cerny
Yay! :) Good News!
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