Eight Pounds!

Caroline is 8.6 oz. today. Caroline had a synagis shot today as well as a rota virus vaccine orally. These are new vaccines and were not available when Carley was little. It is scary, but I would not let them give her any other vaccines today and they really did not agree with me. I came home and gave them both tylenol and put them to bed. It was a rough morning to get ready and go to the doctor. Carley got a flu shot too! Cameron had to come help at the end of the appt. We were there for two hours!! I will never take them both together again. It was completely rushed and I am still stressed from making decisions with little or no information and support with what I am up against. My pediatrician does not know or understand Caroline's diagnosis. To her credit neither do I. She thought it was related to downs. I said this is 2/3 of a set of chromosomes not one or two extra or deleted chromosomes. It was a morning like this, " No one should have to do this or feed their child this way." In the meantime I was rushing out the door, changing two diapers, Caroline would not take all of her bottle. I went to grab the syringe and fill it with milk. It popped and bruised my finger. It has happened three times and all of the times I just want to gasp. We made it to the dr. only to wait and be there for two hours. I am beat. Please pray for continued strength. It is hard to feel hopeful and positive everyday when no one else is in my shoes day in and day out.