Please pray for me as I am overwhelmed with all of our new things I am learning and having to do with Caroline. I am tired and still tweaking her feeding issues. Apparently some children do feed from a bottle and you are able to tube feed measured amounts straight into a tube. However that is not working with little Caroline. It is too much too soon and too much milk too fast. Do not ever take for granted how your child and baby eat so easily from a bottle or breast this is way complicated and detailed on a daily basis of measuring and calculating constantly. That will not end as well as Caroline's complex feeding needs. Yesterday and today have been trial by error with feeding. We were going home Monday, but now Tuesday at lunch time is looking more realistic. We are going to have to have a feeding pump, a portable one a that if we are ever to leave our home. We also will have a portable sleeping monitor to monitor respiration and heart beat. This mainly is too alert us of any possible SIDS moments - she is apparently a high risk for this. She does not have heart problems or oxygen problems at this point so I am hoping that monitor will only be for our night time sleep and not for our trips to Target. Today was a better day. We had lots of happy visitors. Mimi, Aunt Kelly ,Carley and Daddy came this evening. Mr. Don and Mrs. Sharon came today all the way from Tennessee.
We will more than likely be coming home Tuesday early afternoon all things considered.
4 comments:
The MRI news is great. I knew Caroline was too responsive and happy looking in her pictures to have anything wrong with her brain. When you get home in your own surroundings, hopefully you can take a deep breath, relax a little bit and then the feeding issues will be better and easier to deal with. Ya'll are on my mind often. Hang in there and think good thoughts.
Peggy
We are praying for you all.
Kim,
If you are anything like me (and I happen to know you are), the anxious moments can come unexpectedly and seem to flood over you. I pray that, in those moments, the Lord will help you to remember that He is constant. Rejoicing that our faith in Him can remain secure, even as our emotions ebb and flow.
Love you dearly,
Jenn
Kim,
I am glad you got to come home last night! Surely Caroline is much happier in her own bed...and yourself as well! It was so good to see you all, just wish I could have spent more time with sweet baby Caroline.
Love you,
Kelly
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