Thumbalina

We have been trying to gain lots of weight from last week. Today Caroline weighed 5.9 lbs. This is great news and we have really been working hard at feeding 2hrs every day and 3 hours in the night. Now that everything vital for life has checked out well. We are back to her size and weight with no definite answers, but we are convinced along with our doctors there is an underlying genetic disorder. We are not alarmed by this because we have wondered all along. She is doing great , but we will have about 4 more specialists in our future. We went to the pediatrician to day to discuss all these factors. We are scheduled to have a renal ultrasound of her kidneys to check there first. Our pediatrician was very open to our questions and thoughts and spent over an hour with us yesterday. She is going to contact our genetics doctor to see if we can get in before November. Pray for continued weight gain. The syndromes our doctors are searching out are quite promising as far as development and Caroline's future. Please keep Caroline in your prayers as we continue our journey along this long and winding road.