Genetics visit

Today was a long appt. We went to see Dr. Spence. Overall it was a good visit on what we know. I wish I had more clear answers for us and everyone else. Caroline's genetic blood work, or fish study all came back negative. These are great reports and rule out lots of things for us. Do we know a name for her existing abnormalities all clustered together? Right now we do not have a complete diagnosis. We will see Dr. Spence in 3 mo. and possibly start some physical therapy to work on our low muscle tone. We need to concentrate on sleeping, eating, and gaining weight. We are told to treat her as a normal baby until we find reason to not treat her normally. So by faith, Cameron and I are expecting milestones and normal development. She may always be a petite little thing and may not reach her milestones the same time as Carley, but as long as she progresses and reaches them we are in good hands. We did more blood work today to retest her red and white blood cell count. her red count was low, but not abnormally low. Dr. Spence just wants to see if her levels have risen since the NICU stay. We are also waiting to hear from pathology about the placenta size in utero. There is a metabolic blood test for Caroline that we have not received as of yet either. So we have things to continually pray about. It was disappointing to not have a complete diagnosis, yet encouraging that we are able to bring this before God who does have the answers and a complete diagnosis. I also feel a diagnosis may limit our expectations for Caroline. So as we learn more each day we will keep you all up to speed. I am content to take all this one day at a time and trust in the Lord with all of the unknowns. We do not know what Caroline will be able to do in the future, but we also have not been given anything at this time to limit what Caroline may be able to do.