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Thursday, February 11, 2010

Feeling Loved

We have been busy this week. Carley lost her tooth. we took a therapy break and we have Carley's Valentine party later today. She is five and I can not believe she lost her tooth already and that the tooth fairy came and went. Caroline is really trying to communicate more and more intentionally. She enjoys going to school every Wednesday. We were in Target a week ago and she found Elmo in the most obscure places, but in her line of vision. She pointed and vocalized "Elmo" each time. So Happy!!!! Her new love is my scrapbooks...she will point and scoot until she gets the right one. we have many, but she signs book and then says. "Elmo".....she looks at Carley's trip to Elmo live. Oh how I woudl be thrilled to take her to see Elmo and feel and see her face light up with excitement. She is definetly a love bug!
Yesterday after picking Carley up from a play date I noticed my tire pressure warning light was on. I did not panic because Cameron always tells me I have a while with all those things.....I panic and never want to be stranded. I was stranded at 21 with a car and a blown engine in the middle of the no where and was scared to death. I got my car manual out and it said pull over and get air or call for service. So I kept driving thinking it woudl be fine. It was.................until bedtime.
Thank God for his provision always!!!!!We are still going to be bale to go to school and get our yummy vaelntine strawberrys from Nana at Peterbrooke this am and have our valentine party.
Cameron filled up the Durango and changed my flat on my van and is taking care of the tires to day as now I need three!!!!So God is good....and meets the desires of our hearts no matter the details. I feel loved because my husband takes care of us and provides for us. I love you Cameron!!!!

Thursday, February 4, 2010

Cookies Anyone!!!




New Photos of the Girls




























Video of a Family in Ireland

Attached is a link to a video from a Family in Ireland who went on a morning to discuss the same syndrome that Caroline has.

http://www.tv3.ie/videos.php?video=18946&locID=

Monday, January 11, 2010

Scooting!

Caroline is on the move. She has discovered a way to move toward her toys. She has given up on rolling and has decided to scoot while sitting upright. She rocks on her bottom and scoots many inches at a time. She is also reaching really nicely across her body and side to side. We have to figure out to teach her to crawl. She can support head weight on arms, but she can not support her abdominal and hip weight at all. She is in her stander twice a day for 30 - 40 minutes. I am so excited of her progress as it is many months and times go by with little or no change in the direction of moving forward. I know I should not measure Caroline or myself in this way, but it is really hard and I think maybe a part of my human nature. I know it is not up to me as much as I want her to grow and achieve these milestones for the both of us. But most days I do feel responsible when little progress is not attained. Like I am being lazy or not doing enough for her. Thank you to many friends who support me by prayer even on the hard days and even when I do not know you are thinking of Caroline. Much love.

Tuesday, December 22, 2009

Merry Christmas!!!!

It certainly has been a busy season for our family. Since November we have been on the move! Cameron started a new job here in Jacksonville at a local law firm and is enjoying it though it keeps him busy and away from home. we celebrated Carley's fifth birthday the weekend after Thanksgiving and then onto other Christmas festivities at church and school. We went to Tampa last weekend to see Santa and Mimi and Papa. It was a fun time and the girls are gearing up for Christmas in Greenville with Nana and Papa at the end of this week. We are looking forward to cooler weather and visiting with cousins, aunts, uncles, and grandmas!!!!!we will probably eat and open a few gifts and play!!!!I hope it snows just one day while we are away. Caroline and Carley are both healthy this week and we should be able to stay away from the doctor at least until January. Caroline has started to nod yes and answer our yes questions. it is comical at times. She also will say a yah!!!!to go along with it if it strikes her. She is a joy and still pleasant most of the time. Carley is very independent and loves our attention. She is five and loves Olivia the pig character and has imaginary friends from the show. She openly tells us they are imaginary which cracks me up. She also is quite the artist and pretty much only desires to create and improvise with all her toys. I am thankful for God's provision in our lives even if it is not what I would have chosen. We are here and learning to make friends and memories here. Cameron has a stable job and we are healthy and have a lot to remember and reflect on as another year comes to a close. May you and your family experience HIS true PEACE and blessing on your life.

Wednesday, December 2, 2009

SICK girl

Poor baby!!! Doc on Monday just a regular old bronchitis and low grade fever....I thought not. She sounded and acted too sick. So after two more days I decided to go back. She was worse. Double ear infections. RSV. So She is on treatments every four hours and a new antibiotic and I hope better Please pray Caroline gets well quick...these respiratory infections and viruses are a serious matter in these mosaic babies. Please pray her lungs clear and that theses meds work!!!
All thanks be to God our ultimate healer and sustainer in our time of need.