Caroline can finally consecutively roll toward her toys, with lots of cheering involved!!!
I am very excited after much hard work and coaxing!!!!!
Thursday, March 26, 2009
Monday, March 23, 2009
A-P-P-L-E
Tonight we played with Caroline on the kitchen counter and let her touch real flowers and a real apple. She held the apple looked at us and said, aaapple! So cute!!!!
Saturday, March 21, 2009
No more milkshake
I sometimes refer to Caroline's formula/ vanilla flavored milk as a milkshake. It is quite tasty. it has taken us since August to wean her completely to regular 2% milk, but today that is all she had today in her cups and bottles real milk. we are excited about this milestone. Next we will be saying good bye to her bottles. Just wanted to share our news.
Tuesday, March 17, 2009
Visiting with friends
We are having a fun time visiting with our Tennessee friends. We are staying in tonight for a cook out and idol. Carley had a fun time drawing and cutting out dogs with Mr. Tom. Caroline even had fun doing sign language with Mr. Tom. Carley and I went to the dentist and X-rays today all by herself without me going back to the room with her. It was a funny feeling to be at an appt and stay in the waiting room the whole time. So I checked my e-mail and fb. FUN!!!! Caroline also had a therapy free day!!!!
Monday, March 9, 2009
Geneticist
We met with our geneticist today with whom we love. He is great with Caroline and very hopeful and encouraging to talk to. he is interested in helping us start a foundation and a possible Mosaic Triploidy - DTM conference in Jacksonville to get our support group together. I was hesitant and wanting everyone to be able to make it and wanting things to calm down to start that project. But as we all know things continue and change and never really stop or calm down.
He was impressed with her growth and development and her signs she has acquired. He says the knowledge of signs is equal to words for Caroline and that is progress and positive development! And also counts for communication. We are going to hold off on the MRI since we are pretty sure she is not having seizure activity at this time. He wants to see us after she is two and we can set up an MRI then. She weighed 20 lbs today. We also called the medical company to come pick up her feeding pump - it is official. We are going to take her tube out probably in June or July and we can decide to do this at home. It will heal naturally and no doc required. It is pretty exciting to me since I have not seen her belly without it since 3m old. I also look back and remember when we thought this child would never be chubby and would always have a feeding tube. Thanks be to God for his everlasting Mercy and Goodness!
He was impressed with her growth and development and her signs she has acquired. He says the knowledge of signs is equal to words for Caroline and that is progress and positive development! And also counts for communication. We are going to hold off on the MRI since we are pretty sure she is not having seizure activity at this time. He wants to see us after she is two and we can set up an MRI then. She weighed 20 lbs today. We also called the medical company to come pick up her feeding pump - it is official. We are going to take her tube out probably in June or July and we can decide to do this at home. It will heal naturally and no doc required. It is pretty exciting to me since I have not seen her belly without it since 3m old. I also look back and remember when we thought this child would never be chubby and would always have a feeding tube. Thanks be to God for his everlasting Mercy and Goodness!
Sunday, March 1, 2009
Monday, February 9, 2009
Adventures Await
Wow! it has almost been a month since a post!!!! We have been busy and just needed to take a break from our busy schedule. After my trip to NJ I came home to being much appreciated. Cameron did a terrific job while I was away. I know my girls are loved!!! I do have a new dryer and a new blackberry that I am still learning how to use with all of its great features. Cameron insisted on the new phone with the calendar and contact lists etc... So I am using it all!!!! Carley is doing fine and gearing up for a new Disney adventure with her cousin Cody. She had a cold the week after I returned and we stayed home a couple of days to get well and let me regroup. Some times it is just plain hard to do what we do everyday. it is not fun to have an appointment almost nearly everyday!!!! I know it is life, but still hard sometimes. Caroline is well and learning to sign little by little. She is funny to watch and tries to imitate us. I am pretty sure she understands, but those little hands have trouble forming the detailed signs. Tuesday she is starting Occupational Therapy in home - yeah!!! Just so you all know I have not been totally hiding out in a cave for a month , I also have been computer less for over a week. It was hard, but good to have a forced break form the computer. Cameron is staying busy at work and is also looking forward to our Disney trip. Caroline and Lucy will be at home with MIMI.
My new adventure includes starting the teacher certification process in Fl to teach. I will have a current license by next January. I have 3 tests to take and pass. I will take the first test in April. I do not plan to go back to teach next year, but want to keep my license current for anything that could happen. I also am working on getting an Infant Toddler Developmental Specialist certification which will allow me to work part time with other delayed children and children with special needs and their families a couple hours a week. My goal is to have that certification by next fall. Carley will be attending her pre-school 5 days a week and Caroline will attend MMO on Wednesdays while I try working on Wednesdays a couple of hours. I am excited and wondering what God has in store for us as we embark on new adventures.
Caroline will stay in her Early Steps Program until close to three years before we transition her to a special needs school program. She is also awaiting her stander. We will be changing health insurance and ordering the stander again in March. We hope this will allow her to stand and walk someday!!!!! She is still very weak in her upper body and has regressed in her desire to roll and push up on her hands. Please pray her muscle tone will increase. we also will be getting an MRI in the next month or so to check on brain development and any possible seizure activity. Keep us on your mind and pray for daily strength and encouragement!!!!
My new adventure includes starting the teacher certification process in Fl to teach. I will have a current license by next January. I have 3 tests to take and pass. I will take the first test in April. I do not plan to go back to teach next year, but want to keep my license current for anything that could happen. I also am working on getting an Infant Toddler Developmental Specialist certification which will allow me to work part time with other delayed children and children with special needs and their families a couple hours a week. My goal is to have that certification by next fall. Carley will be attending her pre-school 5 days a week and Caroline will attend MMO on Wednesdays while I try working on Wednesdays a couple of hours. I am excited and wondering what God has in store for us as we embark on new adventures.
Caroline will stay in her Early Steps Program until close to three years before we transition her to a special needs school program. She is also awaiting her stander. We will be changing health insurance and ordering the stander again in March. We hope this will allow her to stand and walk someday!!!!! She is still very weak in her upper body and has regressed in her desire to roll and push up on her hands. Please pray her muscle tone will increase. we also will be getting an MRI in the next month or so to check on brain development and any possible seizure activity. Keep us on your mind and pray for daily strength and encouragement!!!!
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