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Thursday, March 26, 2009

Rolling, rolling, rolling

Caroline can finally consecutively roll toward her toys, with lots of cheering involved!!!
I am very excited after much hard work and coaxing!!!!!

Monday, March 23, 2009

A-P-P-L-E

Tonight we played with Caroline on the kitchen counter and let her touch real flowers and a real apple. She held the apple looked at us and said, aaapple! So cute!!!!

Saturday, March 21, 2009

No more milkshake

I sometimes refer to Caroline's formula/ vanilla flavored milk as a milkshake. It is quite tasty. it has taken us since August to wean her completely to regular 2% milk, but today that is all she had today in her cups and bottles real milk. we are excited about this milestone. Next we will be saying good bye to her bottles. Just wanted to share our news.

Tuesday, March 17, 2009

Visiting with friends

We are having a fun time visiting with our Tennessee friends. We are staying in tonight for a cook out and idol. Carley had a fun time drawing and cutting out dogs with Mr. Tom. Caroline even had fun doing sign language with Mr. Tom. Carley and I went to the dentist and X-rays today all by herself without me going back to the room with her. It was a funny feeling to be at an appt and stay in the waiting room the whole time. So I checked my e-mail and fb. FUN!!!! Caroline also had a therapy free day!!!!

Monday, March 9, 2009

Geneticist

We met with our geneticist today with whom we love. He is great with Caroline and very hopeful and encouraging to talk to. he is interested in helping us start a foundation and a possible Mosaic Triploidy - DTM conference in Jacksonville to get our support group together. I was hesitant and wanting everyone to be able to make it and wanting things to calm down to start that project. But as we all know things continue and change and never really stop or calm down.
He was impressed with her growth and development and her signs she has acquired. He says the knowledge of signs is equal to words for Caroline and that is progress and positive development! And also counts for communication. We are going to hold off on the MRI since we are pretty sure she is not having seizure activity at this time. He wants to see us after she is two and we can set up an MRI then. She weighed 20 lbs today. We also called the medical company to come pick up her feeding pump - it is official. We are going to take her tube out probably in June or July and we can decide to do this at home. It will heal naturally and no doc required. It is pretty exciting to me since I have not seen her belly without it since 3m old. I also look back and remember when we thought this child would never be chubby and would always have a feeding tube. Thanks be to God for his everlasting Mercy and Goodness!