Sunday, December 21, 2008
A cup and No Pump
Caroline is trying new things this week. I am so thrilled that she is using a sippy cup after working on this and trying lots of cups. She is able to hold it if I tilt or prop her up. To night is also her official night on her pump. It is no longer mandatory nutritionally for her to have the pump. So we are weaning to regular milk and a cup. It is a long process. She will have to keep her tube for six more months and I will keep the pump on hand until we remove the mickey button. We are hoping to get her stander, wheels, and leg braces all covered by insurances before December 31st!!!!
Tuesday, December 16, 2008
Daffos
Caroline, Carley, and I went down to the San Marco area in Jacksonville this morning. Caroline got measured and casted for her tiny foot braces. we got to pick out pink foam inserts and a little lamb decorated ribbon. They are to aid in standing. The good news is insurances should cover all of the cost for these. we will have them by January. They will also be beneficial with using her stander. we hope to get hat by then end of January!
Thursday, December 11, 2008
Brave Carley
Carley has been very lethargic and not herself the past week. However it came in waves and spurts and she had no fever or other sick symptoms. Although she did not want to eat anything - not even cookies or ice cream. So we force fed bites and minimal drinks for about 5-6 days before I could not do it any longer. We went to the Dr. yesterday for a hopeful answer.I also cringed as I hoped that nothing major was wrong. So we waited two hours and had a simple urinalysis that did indicate a possible infection. We also talked and looked at her growth and weight. She did not have strep or anything obvious. We also checked for diabetes, but her urine did not indicate that. She actually started eating and getting some appetite back yesterday.
The doctor was not concerned, but Cameron and I were not happy with no answers. So we opted for a full blood panel today at another location out at the beaches and 45 minutes away. So we gave Carley numbing cream and cow milk from Starbucks and off we went. She thought she was getting her blood pressure taken. I told her it was blood work and that there was a little pinch and then it would be all over with. She did great and I think the cream really helped!!!!
She did scream and pitched a fit to get me out of here, but it was short lived. Cameron held her head and I squeezed her arm and all of us held her arm still - three hands for five tubes.
We got some normal results back today. We are awaiting more news, but are hopeful all is well.
I am needing to rule out anything for my own knowledge to know where to go next and how to get her to eat something!!!!! So we have been bragging on how brave she was today. I asked Cameron if he thought I can numb her legs up when we go for her four year old check next.
The doctor was not concerned, but Cameron and I were not happy with no answers. So we opted for a full blood panel today at another location out at the beaches and 45 minutes away. So we gave Carley numbing cream and cow milk from Starbucks and off we went. She thought she was getting her blood pressure taken. I told her it was blood work and that there was a little pinch and then it would be all over with. She did great and I think the cream really helped!!!!
She did scream and pitched a fit to get me out of here, but it was short lived. Cameron held her head and I squeezed her arm and all of us held her arm still - three hands for five tubes.
We got some normal results back today. We are awaiting more news, but are hopeful all is well.
I am needing to rule out anything for my own knowledge to know where to go next and how to get her to eat something!!!!! So we have been bragging on how brave she was today. I asked Cameron if he thought I can numb her legs up when we go for her four year old check next.
Saturday, December 6, 2008
Wednesday, December 3, 2008
Gratefulness
It is now December and everyone is getting ready for Christmas. I just wanted to stop and reflect on Thanksgiving. This year has been another world wind for us, yet we have so much to stop and give thanks for. Cameron is enjoying work and we are glad he still has a job with this economy. Carley loves her school and has loving teachers to help her learn and grow. WE are grateful for all the caring nursery workers who reach out and care for Caroline on Sundays.
We are in progress of many things with Caroline. We are waiting for her stander and leg braces to follow in the coming months. She is still cutting her third tooth and making lots of progress at the dinner table. Last night she ate squash and salmon. We are weaning off her nighttime feeds. Our goal is January. I have been offering her a cup,but it has not happened yet.
She is making lots of noises and seems to have great intent to speak and interact with us. She says Mama and Dada clearly. She waves, claps, and peek-a- boos on command. WE are hoping to add new sounds. her eye contact is more frequent with less wait time in between our responses. These are all good things as reported from speech therapy. We are hoping to add OT in January as well. A year ago we did not know all Caroline would be able to do and we do not take her for granted or God's faithfulness to us. I appreciate each one of you who pray and continue to check in on us. May you all have a safe and Happy Christmas in the days ahead!!!!!
We are in progress of many things with Caroline. We are waiting for her stander and leg braces to follow in the coming months. She is still cutting her third tooth and making lots of progress at the dinner table. Last night she ate squash and salmon. We are weaning off her nighttime feeds. Our goal is January. I have been offering her a cup,but it has not happened yet.
She is making lots of noises and seems to have great intent to speak and interact with us. She says Mama and Dada clearly. She waves, claps, and peek-a- boos on command. WE are hoping to add new sounds. her eye contact is more frequent with less wait time in between our responses. These are all good things as reported from speech therapy. We are hoping to add OT in January as well. A year ago we did not know all Caroline would be able to do and we do not take her for granted or God's faithfulness to us. I appreciate each one of you who pray and continue to check in on us. May you all have a safe and Happy Christmas in the days ahead!!!!!
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